Pages
- 2022 Grant Award Announcement
- About Us
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- Brandon’s Story
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- Survey for SCID households where COVID 19 was diagnosed for anyone in the home
- Videos and Podcasts
- What Is SCID
- What is SCID?
Posts
- What is SCID NBS
- SCID Newborn Screening Timeline in the United States
- 501 (c)(3) Letter of Determination
- SCID Angels FAMILY Scholarship
- Ray Ballard TRAVEL Scholarship
- Aisha Chaudhary EDUCATIONAL Scholarship Program
- Toolkit for Parents
- Guide to Hematopoietic Stem Cell Transplantation
- Una Guía para Padres Después del Diagnóstico
- A Guide for Parents Following a Positive SCID Diagnosis
- SCID Types and Treatments
- Prueba de detección de Inmunodeficiencia Combinada Severa (SCID) y afecciones asociadas con linfopenia de células T para recién nacidos
- Low T Cell Results
- Expectations and Experience: Parent and Patient Perspectives
Regarding Treatment for Severe Combined Immunodeficiency
(SCID) - Rare Revolution Magazine
- Meet Taylor Dahley
- Traveling with SCID: Our Experience
- Brandon Dahley’s Life Story Chapter 1
- Brandon Dahley’s Life Story Chapter 2
- A Legacy of SCID
- Our Decision to Have Another Child
- The Legacy Continues
- Primary Immune Deficiency Treatment Consortium Meeting
- Brandon Dahley’s Life Story Chapter 3
- Brandon Dahley’s Life Story Chapter 4
- Brandon Dahley’s Life Story Chapter 5
- It Can Happen Again
- Alexa Celebrates Her Life Day by Giving to SCID Angels
- You Really Do Need a Will
- Brandon’s Life Story Chapter 6
- Immunoglobulin Product Booklet
- Brandon Dahley’s Life Story Chapter 7
- Brandon Dahley’s Life Story Final Chapter
- We always wanted a big family
- I had prepared myself to accept that I probably wouldn’t ever have a baby
- Be a Community Fundraiser
- Giving Tuesday and Year End Appeal
- Rare Disease Day 2024
- She’s just so joyful
- Can you set the price on a child’s life?
- A new day has come!
- I’m just glad they’re able to advance more treatment options for kids
- Special Ed 101 Evaluation for Special Ed Services
- Give Yourself Permission To Fill Your Bowl First
- Annual Visit to Tuba City and SCID Picnic
- Be Relentless
- Special Ed 101: Individualized Education Plan (IEP)
- We Have a Lot of Hope
- Are You Considering a Clinical Trial?
Archives
- September 2024 (4)
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- March 2024 (3)
- February 2024 (1)
- December 2023 (5)
- November 2023 (1)
- October 2023 (2)
- September 2023 (4)
- August 2023 (1)
- July 2023 (1)
- June 2023 (5)
- May 2023 (1)
- February 2023 (2)
- November 2022 (1)
- August 2022 (1)
- March 2022 (7)
- December 2019 (3)
- July 2013 (1)
- June 2010 (2)
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