Newsletter Articles
We Have a Lot of Hope
Do I have to tell people I have SCID?
Be Relentless
The doctors told us beforehand that it would not be a permanent solution.
I’m just glad they’re able to advance more treatment options ...
The SCID family showcased this month has 2 children diagnosed with Artemis SCID.
A new day has come!
When Jakob got diagnosed our hearts broke in so many pieces. We thought we would never recover when we learned we might lose him at age 2.
Can you set the price on a child’s life?
When Seersha was born an investigational gene therapy, a one-time procedure that the researchers say may provide lifelong results was only available in the United States through a waitlist at The University of California Los Angeles (UCLA).