Connect With Community


SCID Angels is family to me – family who understand, support, and cheer us on through the good and bad moments of this journey.
From Sy, a SCID Mom

Connect In The Cloud

Connect in the Cloud is a live interactive support workshop designed for emotional and practical support for SCID patients or their families. Hosted monthly by SCID Angels, Connect in the Cloud uses a live Zoom chatroom where participants delve into topics which are predetermined by SCID Angels staff and are typically based on suggestions or concerns suggested by SCID families. 

Facebook Page

SCID Angels maintains both a Facebook Page and a Facebook Group. The Facebook Page is a great place to watch for announcements and information related to all SCID topics. Learn about events, webinars, new research and other important updates. From our Facebook Page you can private message directly with us. Anyone may follow the SCID Angels Facebook Page and everyone with an interest in SCID is encouraged to Like our page and do so. 

Instagram

Follow us on Instagram to see what we’re doing and get updates.

 

Twitter

Engage with us on Twitter

 

Facebook Group

When you have a child with a rare disorder it can be very hard to find a group of people who understand what you deal with day to day. The private SCID Angels Facebook group is a moderated group where those with a diagnosed family member can come to share their experiences, ask questions, learn from each other, and develop friendships. The SCID Angels’ Board, volunteers, and Staff make every effort to maintain quality content and safe interactions within the group. The peer-to-peer support found within this group is unmatched and directly affects the lives of families. Our group serves patients and families from around the world. 

Those who request admittance to the group will be asked a number of questions prior to approval. Answers to those questions are required for admittance. 

Newsletter

Families, Health Care Providers, Industry Partners, and all of our friends are encouraged to sign up for our newsletter. Receive our quarterly updates as well as special announcements. Learn what’s happening at SCID Angels. Keep up to date on the latest news on SCID treatment. Learn more about SCID families.

Newsletter Suggestions

We’re always looking for new ideas and suggestions for great newsletter stories. If you have an idea, please let us know below.