Press Release’s/Articles on SCID and NBS

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SCID Newborn Screening has made quite an impact lately in the news. [...]

What is SCID NBS

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On May 21, 2010 our prayers were answered! The Secretary of Health and Human Services, Kathleen Sebelius, announced the addition of SCID to the core panel of 29 genetic diseases.  Our next prayer is to have the screening program implemented in all 50 states and the surrounding US territories. What is Universal Newborn Screening for SCID and why is [...] [...]

Current NBS State Information

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Click on the map to enlarge the image and see the number of conditions that are screened for in your state. To see a list of the current conditions that are screened for by each state click here Current Conditions. [...]

Take Action

Action Alert to Governor Rick Scott

Newborn Screening Saves Lives Act, Bill S.1858 / H.R. 3825M, was signed into law (Public Law 110-204) by President Bush on April 24, 2008.   Although it was signed into law, it has not yet been funded—$44.5 Million. It is estimated that if we do NOT implement Universal Comprehensive Newborn Screening the cost will exceed a Billion [...] [...]

Newborn Screening Pilot Programs

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Currently, there are fifteen states implementing statewide screening for SCID.  They’re Wisconsin, Massachusetts, California, New York,  Michigan, Colorado, Connecticut, Mississippi, Delaware, Florida, Texas, Minnesota, Iowa, Utah and Pennsylvania.   Arizona is doing screening at select locations.  The Wisconsin program began in January of 2008, Massachusetts implemented its program in February of 2009, California began their program on August 16, 2010, Puerto Rico began theirs in September of 2010 and their pilot [...] [...]