SCID Newborn Screening Timeline

  On Thursday, January 21, 2010 the Advisory Committee on Heritable Disorders in Newborns and Children voted to add SCID to the newborn screening panel and has passed on their recommendation to the Secretary of Health and Human Services, who has the final say. She has 180 days to decide whether or not to agree with the […]

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Previous Articles on SCID and NBS

SCID Newborn Screening has made quite an impact lately in the news.

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What is SCID NBS

On May 21, 2010 our prayers were answered! The Secretary of Health and Human Services, Kathleen Sebelius, announced the addition of SCID to the core panel of 29 genetic diseases. Our next prayer is to have the screening program implemented in all 50 states and the surrounding US territories. What is Universal Newborn Screening for SCID and why is […]

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Current NBS State Information

      Click on the map to enlarge the image and see the number of conditions that are screened for in your state. To see a list of the current conditions that are screened for by each state click here Current Conditions.

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Take Action

Newborn Screening Saves Lives Act, Bill S.1858 / H.R. 3825M, was signed into law (Public Law 110-204) by President Bush on April 24, 2008. Although it was signed into law, it has not yet been funded—$44.5 Million. It is estimated that if we do NOT implement Universal Comprehensive Newborn Screening the cost will exceed a Billion […]

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