Chiesi Global Rare Diseases Revcovi Town Hall Follow-up Survey


First Name:
Email Address:
If you are an adult ADA patient or the caregiver of an ADA patient, what is the patient's current age?
What was the age at diagnosis for the ADA patient?
To date, what has the treatment been for the ADA patient (check all that apply) BMT (Bone Marrow Transplant)
GT (Gene Therapy)
Currently on ERT (Enzyme Replacement Therapy)
No longer on ERT (Enzyme Replacement Therapy)
None of the above
Other
Did you or someone in your household attend the SCID Angels and Chiesi Global Rare Diseases Town Hall webinar on 6-22-21? Yes
No
If you were unable to attend for some reason, would you like us to email you a link to view the recorded webinar? Yes
No
You sent me a link to the video and I've already watched it
We're not on Revcovi so this webinar is not applicable
How relevant was the content of the SCID Angels Town Hall Zoom Webinar with Chiesi? Very relevant
Somewhat relevant
Not relevant at all
Was unable to attend webinar
How strongly do you agree with the following statement: The session was clear and well presented. Very strong
Somewhat strong
Neutral
Not strong at all
Was unable to attend webinar
How strongly do you agree with the following statement: The presenters explained the content in a clear and easy to follow way. Very strong
Somewhat strong
Neutral
Not strong at all
Was unable to attend webinar
How strongly do you agree with the following: I was given plenty of time to ask questions Very strong
Somewhat strong
Neutral
Not strong at all
Was unable to attend webinar
I would consider participating in a similar Town Hall webinar or similar event with Chiesi Global Rare Diseases in the future. Very likely
Likely
Not sure
Not interested
Was unable to attend webinar
Are there any other questions you would like to ask Chiesi Global Rare Diseases?
Do you have any additional comments and or suggestions for Chiesi or SCID Angels for Life?
SCID, Angels for LifeChiesi Global Rare Diseases