4 thoughts on “SCID Newborn Screening Timeline in the United States

  • melissa bornheimer

    Hello,

    My name is Melissa Bornheimer. My son Dawson was the baby that was born in Wisconsin who’s life was saved because of the SCID newborn screening. He will be turning 3 in June and is doing absolutely wonderful! If there is ever anything that you guys need help with please don’t hesitate to ask. Wisconsin is up in arms with our new Governer and there is talk that our newborn screening for SCID could actually get cut because of budget issues. We are putting together a task force to try to nip this in the bud. So far there is no news yet….so we wait. I am always looking for any way that I can be a help, so again, if you ever need anything please let me know.

    Thank you so much for all that you do!
    Melissa Bornheimer

    dawsonbornheimer@hotmail.com

    715-212-3421

  • cindy

    i was born a carrier of SCIDS.. and i am currently pregnant with my first.. he is a boy and i was tested and it came back positive.. i watched my brother die from it back in 1994, he was only 4 when he passed and i’m terrified that i will have to watch my son die :*(.. is there any advise you can offer to me.. I’m talking to my doctor and a specialist at the university of utah.. but I feel so helpless and unsure what i should do.. i am trying to find out as much as i can!!! but stressed and so alone in this process that i feel like im lost… so any help would help!!! i don’t really know where to go from here…

  • Heather Post author

    Hi Cindy,
    I’m sorry to hear that your baby boy will be born with SCID. I know how scared you must be feeling right now, as I felt the same way. Please know you are not alone! Knowledge is power and you are doing the right thing by gaining as much right now as you can. Please feel free to email me at Heather@SCIDangelsforlife.com anytime and we can “talk” further.

  • Heather Post author

    Melissa,
    So nice to “meet” you! I’m so glad to hear that your son is doing so well, that’s wonderful!!! I certainly hope that when the pilot program is done in Wisconsin, newborn screening for SCID will continue. Please, let’s keep each other posted on this issue and thank you again for contacting me. You can email me anytime at Heather@SCIDangelsforlife.com

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